How can I better cope with SICKLE CELL ANEMIA (other than warmth,low-stress,eating right,not over exerting)?

Sickle Cell Anemia is an incurable heriditary blood disorder found mainly N pigmented people. This is bcause it evolved N Africa & S. Asia many years ago as a resistance 2 Malaria . It's a complicated disease which consists of a lot of "do's & don'ts", so I won't go N 2 much detail. It affects healthy cells, clogs veins/ arteries & causes severe pain, anemia, organ complications, strokes, blood clots, etc. I'm N the hospital frequently, but am only able 2 ease the pain temporarily. WHAT CAN I DO 2 B MORE ACTIVE N MY QUEST 4 GOOD HEALTH? It seems as if I've tried everything (physically, mentally, spiritually) & am @ a stand-still with my doctors. I'm currently unable 2 hold a job bcause of frequent unpredictable painful episodes (called crises). I have a BFA & work from home when I am not N pain. I am 29 and it only seems 2 B worsening with age. I don't mean to complain, but as you know, there's not much publicity about this condition. Any helpful info is greatly appreciated. TY

Hi I am a 40yr old Latina female who suffers from sickle cell disease SS, i agree with everyone else, but what i have also learn through the years, that the medication that Ur taking, has alot to do with it, get yourself a doctor the specialize in blood disorders, or cancer, there's this medication i take. to help build my red blood cell, the medication is called hydroxyurea 500 mg, the amount of capsules u take, depends on ur blood count.
also your pain medication tolerance makes a very big different, i however have a very high tolerance, so i am able to take 80mg of oxycodone er 3x a day. and 15mg of oxycodone ir every 1-2 hour to a hour. I've met a few friends on-line that are able to take morphine 60mg theres also these pain patches u wear for 3 days, that help control ur pain. being puerto rican with sickle cell disease SS, i still haven't met another Latino person with this illness.
but however I've met a few good friends here on line, I'm looking for other people who want to help me with a book that I'm writing, there isn't any books written on sickle cell from someone, who really know what we go threw, the books that have been written where from medical doctors point of view.
I'm on line whenever I'm not in a pain, so feel free to ask me more question, i hope that i was help full in some kind of way

Annette

I am very sorry for ur pain. Try to eat healthy, have a normal weight, stay active,, Talk to ur doc for more suggestions. I hope I helped a little. Good luck and live life to the fullest!!!

I am 40 years old with sickle cell disease (SS).
Unfortunately I haven't figured this out either, but what I do know is when I am stress..., I can not handle my pain.
I know when I am feeling happy my pain affects me less.

Exercising makes me feel good; you don't have to be a strong man lifting weights but walk daily.

Being around supportive people also helps.

Honestly there is no preventions (doctors and people who don't understand sickle cell thinks there is) however there is not.

What I have learned is to enjoy life to the fullest and not worry about getting sick (it will happen like death will happen, you don't worry about death everyday).

I have 2 degrees and I am not able to work...,
I can only say
Live life to the fullest, try to stay happy and when the pain comes try to see it as a challenge to overcome!!!

Good luck I hope this helped a little.

Hi,

As the parent of a child with S S we have tried many things as well. What we discovered is that diet and supplements is the solutions.Once we focused on diet and an African herb he rarely complains of pain. There is good information at africanchildrensholistichealth.

You already know the answer to your question. GET TO ARIZONA!!!!!